Hi Poppy,
Welcome to the "special club" of people who seem to be experiencing similar side effects with the anti tnfs. I was on Humira for only a couple of months and have now stopped, because apparently I am one of the 1 in 10.000 people who has developed the onset of a rare form of psoriasis as a direct response to taking the drug
Like you, I am now scared to take anything else and wonder what I will end up with if I do. However, I do know that this class of drugs has been a life saver for many people and are able to tolerate them without any problems.
I think you should call your rheumy or specialist nurse immediately and request an earlier appointment as you should not wait until June with this. If you can't get hold of them, you could try your GP, or phone the NRAS helpline for advice.
As for my spots, I've got a pustular rash covering both of the palms of my hands and fingers and soles and toes on my feet - YUCK and look like I've got the plague! The spots itch like hell, and are red and painful, especially when trying to walk. I've tried plastering myself with a cream prescribed by the dermatologist, but it does not seem to work very well.
Hope you get something sorted out soon,
love,
Barbara
XXXXXX
